Funding: MMcA’s time contribution was funded by the National Institute for Social Care & Health Research (UK, Wales) through an Academic Health Sciences Collaboration Clinical Research Time Fellowship. Empowerment is more than controlling others and our surroundings. 4, p. 43. Simply select your manager software from the list below and click on download. This product could help you, Accessing resources off campus can be a challenge. The COSMIN criteria were used to assess methodological quality of the included studies. Study data were collected using the Psychological Empowerment Scale, the Nurse Work Empowerment Scale, and Maslach's Burnout Inventory. This ensured that exclusion criteria were applied consistently for the remaining 85% of titles and abstracts. Greater efforts should be made to progress the empowerment of patients nearing the end of their lives. Patients can participate in health care in many ways. Please read and accept the terms and conditions and check the box to generate a sharing link. It takes courage to seek out and accept empowerment. 1Chairman and Assistant Professor of Business Department . Content validity, internal consistency and construct validity were the most commonly investigated psychometric properties and results indicated intermediate to positive ratings. This approach reflects a belief that patient empowerment does have an underlying structure that could be partly revealed through (constructivist) Qualitative Item Review (QIR) [68] of items captured in measures of patient empowerment identified in the current review, supplemented by (constructivist) qualitative research with patients and a (constructivist/realist) consensus exercise amongst stakeholders, soliciting views from patients, health providers and healthcare policy makers. The assessment of the quality of psychometric properties of included measures using the criteria developed by Terwee et al [23] is summarised in Table 5. You can be signed in via any or all of the methods shown below at the same time. Detailed results for the COSMIN checklist with 4-point scale ratings are shown in S1 Table. Click through the PLOS taxonomy to find articles in your field. Empowerment can support our ethical practice as nurses by reinforcing the power that is inherent to our role as patient advocate as well as to our professional integrity and accountability. Included studies report solely on adult patients (>18 years of age) with end-stage, advanced, terminal and/or life-limiting illness and/or who were defined as receiving non-curative management or palliative care support. These, like all the themes identified, were expressed to different degrees within the literature. To achieve a highly sensitive search strategy, databases were searched from their inception to Sept 15, 2012 using a number of Medical Subject Headings (MeSH) and keywords in four domains: (i) patient (ii) empowerment, (iii) measures and (iv) psychometrics (S1 Fig). According to the World Health Organization (WHO), PE is ‘a process through which people gain greater control over decisions and actions affecting their health’ [].Similarly, the European Network on Patient Empowerment (ENOPE)—a non-profit association established in 2012 to bring together organizations that implement PE programs across … Models of care incorporating patient empowerment strategies are being increasingly adopted in response to these population changes with the aim of alleviating the impact of morbidity on people’s lives and reducing the demands placed on health and social care services. OBJECTIVE This paper examines how the term "empowerment" has been used in relation to the care and education of patients with chronic conditions over the past decade. Distribution of sex seems to quite representative across all studies. A brief review of self-report questionnaires capturing patient empowerment to date suggests that available measures in this area have been developed independently, with scale content informed by different theoretical frameworks [12]. Despite policy interest and initiatives relating to patient empowerment, there is limited evidence to support the reliability and validity of existing tools. Many patients would like to take more responsibility for their own health and care, given the opportunities and support to do so. Taking that extra step would demonstrate a true commitment to ‘patient empowerment’. 2008-05-01 00:00:00 Although the term ‘cancer survivorship’ first appeared in the literature over 20 years ago, and is now commonly used by professionals and public alike, it apparently has no agreed definition. Neither minimal important change (MIC) nor minimal important difference (MID) were assessed in any study. We propose that the identified themes may provide a useful starting point to guide the assessment of existing or planned services and inform future research. A synthesis of constructs captured by the included measures is shown in Table 3, grouped into four domains. The challenges facing the field of patient empowerment are similar to those in related fields, such as shared decision-making [59,60] and decisional regret [66], where lack of conceptual clarity and limited evidence of reliability and validity of measures are well-documented. If we limit our focus of the term "empowerment," we limit our ability to understand and define empowerment on a conceptual level. Empowerment is a process whereby patients gain the necessary knowledge to influence their own behavior to improve the quality of their lives. Cardiff University, Cardiff, United Kingdom. No discernible differences were identified between the cancer and non-cancer groups with respect to patient empowerment. Constructs ranged from patient empowerment conceptualised as: Fifteen constructs were captured by one measure only. A total of 20,591 papers were screened, but only 13 papers met our inclusion criteria after quality assessment (Figure 1). In the theoretical model, each theme has a potentially mutually influential relationship with self-identity. Countries represented across the 13 papers were the United Kingdom (n = 5),25–29 the United States (n = 3),27,30,31 Australia (n = 3),31–33 Ireland (n = 2),27,34 the Netherlands (n = 1)35 and Norway (n = 1).36 There were seven qualitative studies and six mixed method studies, the characteristics of which are summarised in Tables 1 and 2, respectively. Responsiveness, which was assessed in one study, received an intermediate score [18]. To fully explore the notion of patient and family empowerment, this article will focus on the concept of empowerment in conjunction with practice development. Implications for practice, theory or policy. This study contributes significant clarification of how patient empowerment, as operationalised in measures purporting to capture this concept, overlaps with, and differs from other related constructs. Galatia Iatraki 1, Haridimos Kondylakis 1, Lefteris Koumakis 1, Maria Chatzimina 1, Eleni Kazantzaki 1, Kostas Marias 1,2 and Manolis Tsiknakis 1,2. 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